Knowledge * Registers * Ankylosing Spondylitis

Ankylosing Spondylitis

The register monitors the long-term safety of these treatments and increases our understanding of their effects launched in April 2012. This includes studying their efficacy, cost-efficacy, toxicity and information on the effects of discontinuing treatment or switching agents. The register recruits patients with ankylosing spondylitis who are being prescribed particular biologics, as well as a control group of patients who have not been prescribed them.

The register is led by Professor Gary Macfarlane and Dr Gareth Jones of the Epidemiology Group at the University of Aberdeen. Recruitment to the register works differently from recruitment to the rheumatoid arthritis register. Hospital sites agree to be part of the study, so recruitment is only possible for the patients who are treated in those centres.

If you are an NHS clinician, health professional or research network staff with a recruitment query about a patient or the treatment cohorts contact the register team in Aberdeen.

Rheumatoid arthritis

The register tracks the progress of patients with severe rheumatoid arthritis who are receiving various biologic agents in order to monitor the safety and effectiveness of these treatments over the long term.

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Juvenile idiopathic arthritis

This register collects detailed information on the effectiveness and safety of children with juvenile idiopathic arthritis.

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