Our biologics register for rheumatoid arthritis is run by a team based in the Arthritis Research UK Epidemiology Unit at the University of Manchester. They track the progress of patients with severe rheumatoid arthritis who are receiving various biologic agents in order to monitor the safety and effectiveness of these treatments over the long term. Information on any adverse events is also captured.
Patients on the register are flagged with the NHS Information Centre, which notifies the register of anyone who develops a cancer plus any deaths with their cause.
Patients with similar disease activity on conventional disease-modifying anti-rheumatic drugs and recruited in a cohort since closed still provide comparison data. The register is on the NIHR CLRN portfolio database so there is financial support for registering patients.
If you are an NHS clinician, health professional or research network staff with a recruitment query about a patient or the treatment cohorts in rheumatoid arthritis , contact the registers team in Manchester.